The Impact of Long Term Illness

Interview with Jayden De La Rosa

In this episode of the Strength Beyond Struggle podcast, host Michele Nelson explores the profound impact of living with diabetes and the intertwined challenges of mental health with guest Jayden De La Rosa. Jayden shares her personal journey, highlighting the feelings of shame and fear that accompanied her diabetes diagnosis. They discuss the importance of self-acceptance, the role of mental health in managing chronic illness, and the significance of support systems. The dialogue emphasizes the need for advocacy and the hope for a future where mental health stigma is diminished.

Episode Highlights: diabetes, mental health, chronic illness, self-acceptance, shame, advocacy, body image, emotional health, support systems, personal growth

Jayden overcame shame

How living with a long term illness can increase the effects of mental health

People with a mental health diagnosis are also more likely to develop certain chronic health problems, which include diabetes, heart disease, kidney failure and other maladies. Studies document the link between chronic health challenges and mental health disorders. Johns Hopkins researchers looked at the link between diabetes and depression. Some 37 million Americans have diabetes. On average – they’re up to four times as likely to also suffer depression. And guess what: Only one third to one half of diabetics with depression ever get treatment for the depression. Why? Doctors don’t ask, which leaves the patients locked in a spiral of shame that haunts people with mental health conditions at every level. The link is overwhelming. That failure to get treatment may explain why diabetics with depression have a 45% higher risk of death, compared to diabetes not suffering from depression.
 • The diagnosis of diabetes can trigger a cascade of emotions, including shame and fear. • Mental health issues are often linked with chronic illnesses like diabetes. • Self-acceptance is crucial; it’s okay to have unique needs and struggles. • Shame can lead to a cycle of depression and anxiety, impacting overall health. • Support systems, including friends and community, play a vital role in recovery. • Finding balance in life involves addressing both physical and mental health. • Self-talk and positive affirmations can help break the cycle of shame. • Advocacy for mental health awareness is essential for reducing stigma. • It’s important to remember that everyone has mental health, not just mental illness. • Personal growth often comes from confronting and sharing one’s struggles.

Research on Long Term Illness and Mental Health

Research Notes and Sources: 

Long term illness and mental health

 

National Institutes of Health website:

https://www.nimh.nih.gov/health/publications/chronic-illness-mental-health

Examples of chronic diseases include autoimmune diseases, diabetes, cancer, epilepsy, heart disease, HIV/AIDS, hypothyroidism, multiple sclerosis, and pain.

People with chronic illness are at higher risk for mental health conditions including depression, anxiety, stress, brain changes, medication and a  family history…

Moreover, depression and stress disorders can lead to chronic disease – including heart disease, diabetes, stroke, pain, osteoporosis, and Alzheimer’s disease.

Depression symptoms:

    • Persistent sad, anxious, or “empty” mood
    • Feelings of hopelessness or pessimism
    • Feelings of irritability, frustration‚ or restlessness
    • Feelings of guilt, worthlessness, or helplessness
    • Loss of interest or pleasure in hobbies and activities
    • Fatigue, lack of energy, or feeling slowed down
    • Difficulty concentrating, remembering, or making decisions
    • Difficulty sleeping, waking too early in the morning, or oversleeping
    • Changes in appetite or unplanned weight changes
    • Physical aches or pains, headaches, cramps, or digestive problems without a clear physical cause that do not go away with treatment
  • Thoughts of death or suicide or suicide attempts

 

Science Direct:

https://www.sciencedirect.com/science/article/abs/pii/S2212657023000491

from the journal Mental Health and Prevention (Dec. 2023)

The study explored link between cholesterol disease, kidney disease, coronary heart disease and asthma and development of mental health problems.  All four diseases proved significantly associated with poor mental health – People with chronic diseases also suffered longer bouts of things like depression than people without such diseases.

Background findings include:

  • National Institute of Mental Health reports one in eight people live with a mental health disorder world wide, but the number is much higher in the US.
  • Mental health disorders include mood, anxiety, substance abuse, psychotic
  • Adults with mental health disorder are more prone to poor academic performance, poor sexual health, self-harming and suicide.
  • Chronic illness and mental health disorders interact – sometimes cause, sometimes effect. Mental health disorders also make it harder to get healthy due to poor compliance, medication issues and even compromised immune functioning.
  • Cholesterol diseases are linked to anxiety and depression, which in some cases can be caused by the anti-cholesterol drugs
  • People with depression diagnosed with a chronic disease in turn have poorer prognosis, increased mortality.

 

Intersection of mental health and chronic disease

Johns Hopkins University website:

https://publichealth.jhu.edu/2021/the-intersection-of-mental-health-and-chronic-disease

  • People with chronic disease are rarely referred to mental health treatment to help cope with the intersection.
  • The 37 million Americans have diabetes are two or three times more likely to develop depression than the general population. However, less than half of diabetics with depression get treatment for the depression.
  • “It’s a big issue,” says Joseph Gallo, MD, MPH, a professor in Mental Healthwhose research focuses on the intersection of physical and mental health. “There’s ample clinical and epidemiologic evidence that shows the risk for depression is higher among those who suffer from chronic illnesses.”
  • Diabetics with depression have a 46% higher risk of death compared to diabetics without depression.
  • According to the CDC, 51% of Parkinson’s patients, 42% of cancer patients, 27% of diabetes patients, 23% of cerebrovascular patients, 17% of cardiovascular patients, and 11% of Alzheimer’s patients also have depression.
  • In a 2020 issue of The American Journal of Geriatric Psychiatry, Gallo explains that depression can lead to poor self-care, excess disability, and increased mortality. 
  • Experts say we must de-stigmatize depression to make it easier for people with chronic disease to also get mental health treatment

 

Prevalence and correlates of stress, anxiety, and depression in patients with chronic diseases: a cross-sectional study

https://mecp.springeropen.com/articles/10.1186/s43045-023-00340-2

  • In sample of 323 in patients with chronic disease (heart, diabetes, cancer, respiratory), 69% suffered from stress, 51% from anxiety and 59% from depression based on research review.
  • Cardio vascular patients had highest rates of stress, anxiety and depression.
  • Factors that correlated with risk of a diagnosis of stress, anxiety and depression included age, marital status, social isolation, length of hospital stay, social relationships, number of frequent visits to the hospital/month, and the lifestyle of the patient.

 

https://www.mentalhealthjournal.org/

Impact of Mental Health on chronic conditions and cost implications- Leveraging data to predict risk

https://www.mentalhealthjournal.org/articles/impact-of-mental-health-on-chronic-conditions-and-cost-implications-leveraging-data-to-predict-risk.html

  • Mental health issues increased cost of caring for people with chronic disease by 64% in review of treatment cost of nine different conditions.
  • Chronic conditions affect 120 million Americans, many with multiple conditions.

Conclusion:

“Recognition and management of MI is being increasingly recognized as a major unmet need. With greater emphasis on addressing MI by the Centers for Medicare and Medicaid Services (CMS), there has been increased interest amongst government and commercial health plans to allocate resources to optimize MI care. Several private-equity backed care management companies supported with digital applications have emerged in the past 5 years to partner with RBEs to tackle this problem. Analytics that are developed with validated AI algorithms are critical in not just identifying and managing prevalent MI members but also in predicting the cost and disease implications of MI in chronic conditions.”

 

The Impact of Long Term Illness on Mental Health Chapters

00:00 The Beginning of a Journey: Diagnosis and Struggles

02:45 Living with Diabetes: The Emotional Toll

05:30 Coping Mechanisms: From Partying to Pain

08:22 The Feedback Loop: Mental and Physical Health Connection

10:59 Turning Point: Seeking Help and Finding Balance

14:05 The Power of Self-Talk and Community Support

16:55 Embracing Life: Overcoming Shame and Stigma

19:33 Advocacy and Hope: A Message for Others 

22:26 Introduction to Jayden’s Story

23:07 The Link Between Chronic Illness and Mental Health

24:12 The Importance of Screening for Mental Health

25:16 Ending the Silence on Shame and Mental Health

25:33 Embracing Uniqueness and Individuality

26:45 Strength Through Struggles and Community Support